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Viewing 1-10 of 18 results (listed alphabetically A - Z)

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Note: You may only specificy one type of location (zipcode OR city OR county OR state), not a combination.

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Alport Syndrome Foundation, Inc

Provides information about Alport Syndrome, a rare kidney disease.

Services: Board/Committee Member Volunteer Opportunities, Communications/Marketing Volunteer Opportunities, Computer/Internet Services Volunteer Opportunities, Disease/Disability Information, Fundraising Volunteer Opportunities, Medical and Health Sciences Research, Nongovernmental Agency Departments, Workshops/Symposiums

PO Box 4130

Scottsdale, AZ 85261

(480) 800-3510

Aplastic Anemia & MDS International Foundation

Provides information to people with blood and bone marrow diseases such as aplastic anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related diseases.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Research Funds, Workshops/Symposiums

4330 East West Hwy

Ste 230

Bethesda, MD 20814

(800) 747-2820

Cornelia de Lange Syndrome Foundation, Inc

Provides information about Cornelia de Lange Syndrome, a genetic disorder.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Patient to Patient Networking, Workshops/Symposiums

30 Tower Ln

Ste 400

Avon, CT 06001

(800) 753-2357

FASD United

Provides information and support to people living with Fetal Alcohol Spectrum Disorders (FASD) and other preventable intellectual disabilities.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Subject Specific Public Awareness/Education

Confidential location

Mc Lean, VA 22101

(202) 785-4585

GBS/CIDP Foundation International

Provides information and support to people with Guillain-Barre Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, and other disorders of the peripheral nerves.

Services: Disease/Disability Information, Nongovernmental Agency Departments

375 E Elm St

Ste 101

Conshohocken, PA 19428

(866) 224-3301

International Foundation for Gastrointestinal Disorders

Provides information and support for children and adults with gastrointestinal disorders, including chronic constipation, Irritable Bowel Syndrome (IBS), Gastro-Esophageal Reflux Disease (GERD), and bowel incontinence.

Services: Disease/Disability Information, Nongovernmental Agency Departments

537 Long Point Rd

Ste 101

Mount Pleasant, SC 29464

(414) 964-1799

International Rett Syndrome Foundation

Provides information and support for families affected by Rett Syndrome, a neurodevelopmental disorder.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Research Funds

4600 Devitt Dr

Cincinnati, OH 45246

(800) 818-7388

National Down Syndrome Congress

Provides information about Down syndrome to parents and professionals.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Self Advocacy Support, Workshops/Symposiums

30 Mansell Ct

Ste 108

Roswell, GA 30076

(800) 232-6372

National Down Syndrome Society

Provides information and support for people with Down syndrome, a genetic condition.

Services: Disease/Disability Information, Nongovernmental Agency Departments

1155 15th St NW

Ste 540

Washington, DC 20005

(800) 221-4602

National Fragile X Foundation

Provides information and support for people with Fragile X syndrome, a genetic condition.

Services: Disease/Disability Information, Nongovernmental Agency Departments

1012 14th St NW

Ste 500

Washington, DC 20005

(800) 688-8765

Viewing 1-10 of 18 results (listed alphabetically A - Z)

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